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Victorian Childhood Outcomes Cancer Registry development

The Victorian Childhood Cancer Outcomes Registry (VCCOR) is being developed in partnership with the New Zealand National Child Cancer Network (NCCN).

It will strategically integrate data from government, healthcare, and research sources. That data can then be used to enhance service improvement, monitor outcomes, improve the quality of care, and drive research for children and adolescents who have undergone cancer treatment in Victoria.

The platform is currently under development by NZ-based software team MedSyn, with certain modules undergoing testing. Ethical approvals are in place and we aim for the platform to go live in Autumn 2024.

Impacts

The registry will:

  • support service improvement and quality monitoring, by collating key milestones and treatment details in a modern data environment that is easy to maintain and access and that is integrated with data visualisation and business intelligence tools
  • facilitate clinical and health service research into elements of paediatric cancer care
  • facilitate data-driven clinical decisions and inform equitable and integrated models of care.

The VCCOR Business and Functional Requirements provide an in-depth overview of the features and functionalities to be developed. They include a detailed exploration of the data fields that will be captured, offering comprehensive insights into the capabilities of the registry.

Applications to access registry data will be submitted through the VICS data services page.

Contact

pics.admin@rch.org.au